30.07.2014, Berlin | Born with cystic fibrosis, the eight-year-old Tino has learned to live with the disease from an early age. The book “Tino Mukolino,” to be published in August 2014, introduces both young and older readers to the boy’s daily routine, family and school life, to his friends and the strict choirmaster Piepenström. When Tino gets to know the kiosk owners Mr. and Mrs. Löffelberger, they help him make a big dream come true.
Produced in cooperation with the Cystic Fibrosis Outpatient Clinic at the Children’s Hospital Munich-Schwabing and cfi aktiv e.V., an association that offers support to cystic fibrosis patients, “Tino Mukolino” is a story book that explains the disease to children. Through a cheerful story of Tino, an eight-year-old boy born with cystic fibrosis, the book seeks to communicate the disease and its therapeutic options to the affected children and their families. Author Ursula Meisinger makes the ups and downs of the disease the subject of a continuous story that is suitable for children. Separate texts explain cystic fibrosis in a way that children can understand, while photographs and illustrations give a vivid image of, for example, therapeutic devices, medical examinations or breathing exercises. Thanks to the collaboration of a cystic fibrosis specialist from the Children’s Hospital, the contents reflect the latest scientific knowledge.
The book is distributed free of charge to children who are suffering from cystic fibrosis and who are treated in the hospital. It aims to make the hospital stay easier for them and their families and to help them understand the importance of the therapies that are presented through the texts, photographs, and illustrations.
A similar book called “Eddie Flitzefuß im Krankenhaus” (Eddie Flitzefuß in the Hospital), which will soon go into its 4th printing, has been used to positive effect at the Children’s Hospital Munich-Schwabing.
The Schering Stiftung supports the production of the book, since it raises awareness for a group of affected people who are paid little attention by society. In Germany, there are some 8,000 people living with this genetic disease for which there is as yet no cure. First therapeutic successes have raised hopes for new research approaches that have the potential to help cure cystic fibrosis in the future.
Conceived and written: Ursula Meisinger-Reiter
Photos: Milly Orthen (DGPh)
Illustrations: Markus Grolik
Consultation from partent and patient perpective: Henriette Staudter, Chair of the association cfi-aktiv e.V. München
Medical consultant: Dr. Elisabeth Vogl-Voswinckel, director of the Cystic Fibrosis Outpatient Clinic at the Children’s Hospital Munich-Schwabing
Physiotherapy consultants: Antje Nielen and Julia Müller
Nutrition consultant: Lucia Irl
If you would like to support the children’s book project, please send your donation to the account below. Please make sure to specify that your donation goes to the project by putting “882 39 62 Kinderbuch Tino Mukolino” in the reference field!
Once the book’s first edition is sold out, your donation will go towards reprinting the book.
Klinikum rechts der Isar
IBAN: DE82 7005 0000 0000 0202 72, BIC: BYLADEMM
(Bayer. Landesbank, Bank Code 700 500 00, Account No. 20272)
Children’s Hospital Munich-Schwabing
Photography and New Media
Ursula Meisinger-Reiter and Milly Orthen
Parzivalstr. 16, 80804 Munich
Phone: ++49 (0)89 3068-2490
For more information, please contact the Schering Stiftung at ++49 (0)30-20 62 29 60 or visit http://www.kind.med.tu-muenchen.de/cms/front_content.php?idart=224
Illustration: Markus GrolikShare this post
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